Cardiologist

My son, Jack, was referred to Dr. Rabih Hamzeh. A pediatric cardiologist here in the Heart of Texas... Hehe.. a little heart humor. To be monitored on his heart due to a 2d echo done in his 3 week stay in El Paso Children's Hospital. Well actually he was originally referred with Dr. Jeffrey Schuster but he wasn't accepting new patients till February 2015. I didn't want to wait that long, the only other option they gave me was to meet with Dr. Hamzeh. So I scheduled with Dr. Hamzeh, who was actually such a delight to work with. He knows a little about Ondine's curse but asked to know more. He also gushed about how cute Jack was, as well as his assistant. During the month of December I received a letter in he mail, he wrote up two (hospital) orders of tests; a 2d echocardiogram and a EKG to be done before seeing him again. I should get the results in 3 days, hoping everything isn't too bad. 

Another CCHS mom told me about her daughter getting a 24 hour holter study, which is one of the things I plan to bring up to Dr. Hamzeh. It'll be rough having a 20 month old of liking the idea of having attached wires for 24 hours, but that will give us a look of when he's active and asleep. Proper ventilation is key to keeping Jack stable. Jack's vent settings were actually changed and his heart is a lot better than before, his heart levels before were between 130-145 and when he gets upset, as high as 160! His levels now are 101-135. So that's a whole lot better! 

Once I hear the results and the next step of action I will be posting that up.